Join our mission to fight Lafora Disease
A Lafora patient will typically die within 10 years. There is no cure.
Lafora disease is a rare genetic condition that affects the brain and causes problems with movement and thinking. In this disease, the body cannot properly store glycogen, leading to the buildup of abnormal substances called Lafora bodies.
Transform research, care and quality of life for Angelina and others suffering with Lafora Disease so they may live long and fulfilling lives.
Angelina's life will never be the same
Initially diagnosed with epilepsy, we thought she could maintain a healthy lifestyle - until her Neurologist realised something else was happening to Angelina.
.jpg)
Genetic testing from each of her parents revealed they were carriers of an incredibly rare disease. This disease is known as Lafora Disease.
Lafora symptoms include:
Help raise funds for research, treatment & care
Transform research, care and quality of life for Angelina and others suffering with Lafora Disease so they may live long and fulfilling lives.
Donate nowAngelina's Story