About Angelina
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Who is Angelina Lati?
Angelina Lati is the daughter of Hambi Lati and Niki Markou. She was born in Sydney on 4 March 2004. She was just like any other ordinary girl growing up in the South Western suburbs of Sydney. She had friends, hobbies including dancing, singing and acting and went about her day like any other teenage girl - until she turned 14 years old. Angelina's life was never the same.
Initially diagnosed with epilepsy, we thought she could maintain a healthy lifestyle - until her Neurologist realised something else was happening to Angelina. Genetic testing from each of her parents revealed they were carriers of an incredibly rare disease. This disease is known as Lafora Disease.
What is Lafora Disease?
It is the most severe form of human epilepsy. Most cases of Lafora disease are caused by mutations in one or two known genes. When a child is born with Lafora, they have a normal childhood and do not exhibit any symptoms until they become a teenager. The disease most commonly starts with epileptic seizures in adolescence. The extent of the disease is devastating as it significantly shortens the lives of once beautiful, healthy children.
Donate nowA Lafora victim will die typically within 10 years – There is no cure.
Lafora symptoms include: